A Summary from Dana Farber’s LYNKED IN Conference: Connecting and Empowering Lynch Syndrome Families 2017

The Dana-Farber’s Center for Cancer Genetics and Prevention in Boston just held their second annual LYNKED IN conference on March 18th. The stated goal of the conference is to provide information to patients, as well as their families and caregivers. This was my first experience attending anything pertaining to the Lynch community. I follow Georgia’s website — ihavelynchsyndrome.org — and social media regularly, so I feel like I have an online presence in the community, but I wanted to take the time to actively engage and perhaps… more...

Living with Lynch syndrome: Guest Blog by Elizabeth Cappaert

My last entry in August 2015 (http://goo.gl/xzW91x) focused on my upcoming hysterectomy and emotional reactions. I mentioned that I was diagnosed with colon cancer in May, Lynch syndrome in June, and endometrial cancer in July. Here, I hope to share in greater detail about what I’ve lost, found and claimed since I first heard “cancer”. My first cancer diagnosis came in May 2015. After 2 trips to the ER for unendurable abdominal pain, I was finally referred to a GI doctor who scheduled a colonoscopy.… more...

A Letter To Myself, Age 40

A Letter To Myself, Age 40 A Letter To Myself, Age 40… You have just received devastating news – you have Lynch syndrome and the mutation you have significantly increases your risk for developing colorectal, uterine and ovarian cancer. To make matters worse, you discover your son has a 50/50 chance of having Lynch syndrome. You will be very upset when you receive this news, and you’ll wonder if you’ll make it through it – but you will. Losing your mother at a young age… more...

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