Lynch Syndrome Awareness Day 2017 and Hereditary Colon Cancer Syndromes

Colon Cancer Awareness Month and the Genetics of Inherited Colorectal Cancer In 2000, President Clinton signed a White House Proclamation that March be designated Colon Cancer Awareness Month to bring attention to the second leading cause of cancer death in the United States. Each year, those who have been affected by colon cancer, their caregivers, and advocates come together to celebrate and honor people who have battled colon cancer, increase awareness, and educate the wider community about colon cancer screening and prevention. This Friday, March 3rd, 2017, celebrate… more...

Compassion Fatigue

About six years ago I read a book entitled: “The Monks and Me.” It is about a women’s experience at the venerable Thich Nhat Hahn’s Plum Village Monastery in France. Ever since then I have wanted to visit this monastery and spend one week there. I immediately put it on my bucket list in hopes of going there one day. Like many of those with hereditary cancer syndromes, I have spent the past six years on an enormous physically, emotionally, and spiritually challenging rollercoaster. Prior to my… more...

ihavelynchsyndrome.org, #Lschat, Camille Grammer …

Aishwarya, G, and Leah at The Center for Jewish Genetics ihavelynchsyndrome.org, #LsChat, Camille Grammer, and The Center for Jewish Genetics… Well, this year has certainly started off with a bang! Lots going on this way and I am making great progress in the Lynch syndrome advocacy front. I have completed and filed all of the documentation for my 501(c)(3) status! Much gratitude to John, my hubby, for his unwavering support, work, love, and patience with assisting me with this arduous process! I am still in the process of changing the… more...

THE TIME HAS COME FOR …

The time has come for ihavelynchsyndrome.org The time has come. This blog has evolved tremendously over the past two years; what started off as a hellacious forced menopause story as a result of having Lynch syndrome, has become one the most successful Lynch syndrome sites in the world. This blog is evolving and Lynch syndrome advocacy efforts need to expand and evolve, too; an evolution which will require a collaborative effort from all involved: other Lynch syndrome advocates, other hereditary cancer advocates, doctors, genetic counselors, genetic testing companies,… more...

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