Lynch Syndrome Awareness Day 2017 and Hereditary Colon Cancer Syndromes

Colon Cancer Awareness Month and the Genetics of Inherited Colorectal Cancer In 2000, President Clinton signed a White House Proclamation that March be designated Colon Cancer Awareness Month to bring attention to the second leading cause of cancer death in the United States. Each year, those who have been affected by colon cancer, their caregivers, and advocates come together to celebrate and honor people who have battled colon cancer, increase awareness, and educate the wider community about colon cancer screening and prevention. This Friday, March 3rd, 2017, celebrate… more...

Living with Lynch syndrome: Guest Blog by Elizabeth Cappaert

My last entry in August 2015 (http://goo.gl/xzW91x) focused on my upcoming hysterectomy and emotional reactions. I mentioned that I was diagnosed with colon cancer in May, Lynch syndrome in June, and endometrial cancer in July. Here, I hope to share in greater detail about what I’ve lost, found and claimed since I first heard “cancer”. My first cancer diagnosis came in May 2015. After 2 trips to the ER for unendurable abdominal pain, I was finally referred to a GI doctor who scheduled a colonoscopy.… more...

Living With Lynch Syndrome, One Year On…

Kristen Lummis with her sons… Living With Lynch Syndrome, One Year On. Guest Blog by Kristen Lummis On May 29, 2015 I received a life changing phone call. It was from a physician sharing the results of a recent biopsy. “Mrs. Lummis,” he said in a too-soothing voice. “Are you okay to talk on the phone?” With those words, I learned I had cancer. Family Matters Early onset colorectal cancer is rife among my maternal relatives. Based on this history, I had my first colonoscopy at age 40. A few years later, a… more...

The ButtFolio

I am always interested in helping and promoting unusual advocacy efforts and with that said, I present to you The ButtFolio … We set off on the road to The ButtFolio about a year ago. Ben and I have been best friends for 15 years or so, and both felt that we wanted to do something meaningful. To be completely honest, colon cancer wasn’t even something that came to mind when we were thinking about different causes to support, because it wasn’t something we were even aware… more...

Guest Blogger, Sam Duckworth

Nobody knows ♪♪♪♪  Da trouble my chromosomes seen ♪♪♪♪ Nobody knows ♪♪♪♪ Da sorrow ♪♪♪♪ Sing it, now! All together! When I was invited (was I invited, or did I beg?) to write these words of wit, I thought I might pen a simple little sick log.  You know — present my credentials. But that was dull. Then I thought I would write something uplifting. But I didn’t feel up to it. That’s a joke. But here’s something useful — I hope. Do some research on your disease. Get multiple medical opinions. Don’t take “no” for an answer. In… more...

Guest Blogger and Colon Cancer Survivor, Joe Jung

Colon Cancer Survivor, Joe Jung My story begins at the age of 38. I was having some symptoms, but had NO clue it would lead to colon cancer. I wasn’t feeling like myself and had issues with insomnia, feeling weak, was fatigued and overall, just feeling horrible. Months went by and I had cold sweats, sweating, dizziness and faintness. I was too stubborn and scared to go to the doctor. I finally went to my family physician and told him about my symptoms. My blood pressure was high and… more...

Lynch Syndrome, Your Time Is Up!

Lynch syndrome, your time is up! Check this out! http://www.curetoday.com/community/georgia-hurst/2015/02/i-have-lynch-syndrome Very honored and flattered to be a frequent contributor to Cure Magazine. Gratitude to them for allowing me to give Lynch syndrome a much-needed voice. I will be writing for them on a monthly basis. Regarding our last #Lschat … it has reached 7.8 million people thus far! And that was only our 2nd Tweet chat! Please mark your calendars! We will be holding our NEXT #Lschat on Lynch Syndrome Awareness Day on Sunday, March 22nd. Ellen, Amy, and… more...

Survivor Guilt

Survivor Guilt… I had lunch with my brother in the cemetery the other day; he was uncharacteristically quiet, he’s not much of a conversationalist these days. I suppose death does that to you. He died 19 years ago from colon cancer due to Lynch syndrome at the age of 36. He left behind an 8-month-old baby girl and his wife. Most of his young life was difficult; he endured countless beatings from our father and left home at 18 to join the military in order to get as far… more...

“Mutation” of the Month: FAP by Genetic Counselor, Sarah Witherington

First, before every genetics person writes me an email regarding my use of the word mutation, please let me explain. I chose the title because it’s nice having two M’s together, it looks and sounds nicer frankly than saying “Genetic Syndrome of the Month”, and because it will give me a chance to explain exactly what is a mutation. This “mutation” of the month column will become a monthly blog and so it’s even more important to make sure we are all on the same page. Try to remember… more...

The Cancer Olympics Author, Robin McGee: “Do Age Guidelines Mislead Us in Colorectal Cancer Detection and Diagnosis?”

  Thank you, Georgia, for your kindly invitation to share on this blog. My name is Robin McGee. By day, I am a mild-mannered psychologist. By night, I am a crusading cancer activist. Georgia has positively reviewed my book The Cancer Olympics (http://amzn.to/1gx2mv6). It relates the harrowing story of my very late stage diagnosis of colorectal cancer after years of bungled and inadequate medical attention. It also relates how my community and I successfully lobbied against unfair drug policies in my home province of Nova Scotia, resulting in the best… more...

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