Living With Lynch syndrome: The Emotional Rollercoaster by Guest Blogger Kristen Lummis

Living With Lynch syndrome It was just about a year ago that I started going crazy. Ten months out from a devastating cancer diagnosis and a subsequent Lynch syndrome diagnosis, I’d been holding pretty steady. At one point, in the first months after my surgeries, flush with hope and my oncologist’s report of NED (no evidence of disease), I was heard to say: “cancer has made me a better person. I put on the best face possible. I told myself I wasn’t bitter. I told myself that I needed to be… more...

A Summary from Dana Farber’s LYNKED IN Conference: Connecting and Empowering Lynch Syndrome Families 2017

The Dana-Farber’s Center for Cancer Genetics and Prevention in Boston just held their second annual LYNKED IN conference on March 18th. The stated goal of the conference is to provide information to patients, as well as their families and caregivers. This was my first experience attending anything pertaining to the Lynch community. I follow Georgia’s website — — and social media regularly, so I feel like I have an online presence in the community, but I wanted to take the time to actively engage and perhaps… more...

A Letter To Myself, Age 40

A Letter To Myself, Age 40 A Letter To Myself, Age 40… You have just received devastating news – you have Lynch syndrome and the mutation you have significantly increases your risk for developing colorectal, uterine and ovarian cancer. To make matters worse, you discover your son has a 50/50 chance of having Lynch syndrome. You will be very upset when you receive this news, and you’ll wonder if you’ll make it through it – but you will. Losing your mother at a young age… more...

Power Morcellator for Hysterectomy

  I have returned from a much needed break. I went to St. Louis last week with my son and dog to get away from Chicago and spent some time kayaking, hiking, spent quality time with my family, and just taking it easy. I always come home from there feeling recharged and inspired. Nothing soothes and nourishes me more than being with my family and spending time in nature.  I get a tremendous amount of email from people who want to reach out to me regarding Lynch syndrome, its implications, and… more...

The Implications of Obesity

“Obesity is on its way to replacing tobacco as the number one preventable/modifiable cause of cancer.”                                                                                                                                                   … more...

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